A Season for Appreciation

While April is a great month for awareness (and acceptance), May is the perfect month for appreciation ... of teachers and mothers.

Last week, we celebrated teachers.  If you're the parent of a student with autism spectrum disorder (ASD), you probably particularly appreciate your child's teacherS.  Since I'm raising two students with special education needs, our family celebrates quite a host of educators.  We appreciate classroom teachers who strive to make their lessons inclusive of all learners, keeping individual needs in mind.  We appreciate special education teachers who meet with their colleagues in professional learning communities to adapt curriculum ahead of time.  We appreciate speech language pathologists who encourage other members of our students' teams to generalize newly-acquired skills.  We appreciate specially-designed phy ed teachers who travel from school to school in our district, often working with students in a wide range of age and ability, supporting them in their physical well-being.  We appreciate art and music teachers who are flexible, sometimes without much support from special educators.  We appreciate school nurses who dispense medication, and secretaries who smile while handing our kids a hall pass, and principals who show up to IEP meetings.  They're all teachers, too -- they teach our kiddos how to be the best them they can be.

On Sunday, we celebrated moms.  I celebrated my kids' grandmas, who've had to learn how to interact in a whole new way with their daughter's children.  In my own private reflection, I celebrated the moms who've gone before me on this journey of raising children with ASD; she who listened to her heart instead of her head (or an "expert") along the way, to her child's benefit; she who strapped on the figurative combat boots in case someone needed some *ahem* encouragement to see her perspective; she who collaborated and compromised to make sure her child would get the supports he or she needed.  Those moms inspire me to continue on our journey with diligence and excellence.  I also celebrated the moms of typically-developing children who are flexible enough to encourage their kids to befriend and support my kids, on school grounds and off.

Good Friend co-founder Denise did another kind of celebrating on Friday and Saturday.  She and another Good Friend autism mom were demonstrating and learning about the siblings of students with special needs through a training program by The Sibling Support Project.  Sibshops seek to increase the peer support and information opportunities for brothers and sisters of people with special needs, and to increase parents' and providers' understanding of sibling issues.  The programs appreciate these brothers and sisters, who will likely be in the lives of family members with special needs LONGER than anyone else.  They may be there after parents are gone and special education services are a distant memory.  Throughout their lives, siblings share many of the concerns that parents of children with special needs experience, including isolation, a need for information, guilt, concerns about the future and caregiving demands.  Siblings also face issues that are uniquely theirs including resentment, peer issues, embarrassment and pressure to achieve.

So here's to you, teachers, moms, and siblings.  We hope those around you continue to celebrate your awesomeness!

The Things We Do for Love

I think it's safe to say that teachers love kids. Why else would you spend six hours a day, five days a week, in a room with 25 students? Now I love my kids, but I can guarantee you that if I spent every waking moment with them for the summer, I would go bonkers. In fact, the final weeks of the school year are always a scramble to be sure we have the right mix of down time and scheduled, supported activities to keep everyone happy and healthy (and lovely).


I also love my job, part of which is to go in to schools to teach students about autism. And I often say I can do it for an hour, but it might be a different story if it were 8 to 3.

photo by Curtis Compton, Atlanta Journal-Constitution (2010)

Yet there are these educators who not only punch in and punch out, but think critically about how to make learning more fun and functional for their students.  And not only between those hours of 8 to 3, but specifically before- and after-hours; because often while the students are there at school, they're commanding full attention.


Recently, my 13-year-old son was struggling with team activities in Physical Education (Gym).  His Specially-Designed Phy Ed teacher contacted me, starting off the phone call with, "I've been thinking all night about how we can design a program for him that will be meaningful."  It's the stuff of dreams, really -- both the inspired ideas and the collaborative effort that combine for the magic of effective inclusive instruction.


During an Autism Spectrum Disorder/Developmental Disability Community of Practice meeting last month, one of the round table sessions was on "Hot Topics" for the population in discussion.  It was moderated by a staff member for the statewide Autism Society chapter and a speech therapist for an area school district.  One of the parent-initiated discussions was regarding socialization and meaningful inclusion in elementary school.  


The speech therapist was eager to share her idea of a "Birthday Manager".  This job was created for students with special education needs who benefit from positive social interaction, practice in decision making, and fine and gross motor skill development.  The Birthday Manager has a list of the week's student birthdays.  He or she selects a pre-made card, chooses a piece of clip art to add, and addresses and delivers the card.  The birthday student is happy, the Birthday Manager is proud, and everyone sees how valuable an exchange the exercise is.  Brilliant!  The speech therapist shared a number of ways such an activity fits into existing IEP goals.


Ah, the things we do for love -- for love of students, for love of education, for love of success.  Thank you, educators and therapists, for the love you've shown this past school year.  We look forward to your renewed energy and ideas again in August/September!